ECU Health and Brody School of Medicine team members develop camping programs to provide pediatric patients an opportunity to learn more about themselves and their illness, participate in fun activities like swimming, canoeing, archery, crafts, music and drama, all while making life-long friendships with other children with similar conditions and experiences. While at camp, located at The Refuge in Ayden, children receive 24-hour medical care and close medical monitoring by their ECU Health care teams including physicians, nurses, child life and social workers.
“The goal is for kids to meet other children that may share the same medical condition that they have and to build lifelong relationships,” Mackey said.
For kids navigating life with chronic illnesses, especially in rural communities where connection can be even harder, Camp Hope and Camp Rainbow are more than just a week of fun. According to Mackey, they’re a lifeline, a reminder that they are seen, supported and deeply loved.
“They’ve been enjoying camp,” said Mackey. “I can tell by the hugs and smiles I get daily. Just to see them having fun and not in a medical environment, that’s everything.”
The connections the kids make extend beyond the week.
“They don’t all live in the same area, but they stay in touch with group chats and even checking on each other during hospital stay,” said Mackey. “That kind of support is invaluable.”
Lawsen Ziemba, a twelve-year-old camper, was diagnosed with leukemia when he was just two years old. Ziemba spent his first week at camp this year and said he was able to connect with kids and adults who had gone through some of the same medical experiences he had.
“You can get a perspective from other people that have gone through the same thing you had and have a relationship with them about what you have gone through,” said Ziemba.
One of the camp’s examples of the impact camp has is Heaven Glaspie, a former camper turned counselor. Diagnosed with sickle cell disease, Heaven began attending Camp Rainbow at 8 years old. Now 23, he returns to give back the joy he once received.
“Whenever I was growing up, we had mentors and volunteers that were coming to camp and taking time out of their week to make sure that we had a very great time,” said Glaspie. “For me to be able to do that whenever I aged out of camp and come back and be able to help other people have a good time, that’s one of the best feelings in the world to me. The smile on their face that they give you whenever they’re having the best time of their life at camp, it’s very heartwarming.”
His firsthand experience gives him a unique perspective.
“Not a lot of people can relate to what these kids go through, but I’ve walked in their shoes,” said Glaspie. “I can let them know they’re not alone.”
For both campers and counselors, camp is about more than just memories.
“Camp becomes a family,” Heaven said. “Everybody’s so used to seeing each other in the summer, and even when we go home, we keep talking.”
Mackey said seeing campers grow up and come back as volunteers is inspiring.
“It shows younger kids that they, too, can grow up, go to college, give back,” said Mackey. “It’s powerful for them to see someone living with sickle cell disease or a similar condition to them who’s thriving.”
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